This is an exciting opportunity for a Data Manager to join the internationally recognised UK Cystic Fibrosis Registry team. The UK Cystic Fibrosis Registry is a database of consenting people with cystic fibrosis across the UK collecting demographic, clinical care, and health outcomes data from clinical teams in specialist centres. The Registry is a world-leading resource, the data from which is used to facilitate research, clinical trials, real-world evidence studies and quality improvement projects for the benefit of people with cystic fibrosis. In this new role, you will be responsible for the management and curation of the UK CF Registry’s longitudinal data sets used in support of these work programmes.
You can find out more about what we do here www.cysticfibrosis.org.uk/the-work-we-do/uk-cf-registry
As the right candidate, you will:
- Have demonstrable experience of working with large observational data sets
- Support the Registry with efficient data management and reporting processes
- Have a passion for working with healthcare data and the use of data to improve health outcomes
- Have excellent communication skills so you can present your work clearly and appropriately for a wide range of audiences
- Be able to deliver to agreed timelines and work with colleagues and stakeholders both nationally and internationally
- Be passionate about supporting the Cystic Fibrosis Trust and uniting with us to make sure that everyone can live without the limits of cystic fibrosis
